I’m sitting in the truck on our way home from Cleveland Rainbow Babies Pediatrics Orthopedics with tears of joy and relief.
We prayed (allot) and after speaking with our primary physician, decided on a second opinion for Elyana’s hip surgery. Cincinnati Children’s encouraged us to do so, since it’s such a big procedure. They wanted us to be absolutely certain this was a surgery we were ready for.
We are very thankful again for the Rickle family giving us information on Cincinnati Children’s & Cleveland.
Both have been used in helping us find & gather vital information for Elyana both neurologically & in orthopedics.
After talking with Cincinnati a few times, we were still left a little foggy on details. Today at Cleveland Rainbow Babies the surgeon laid out details/the nitty gritty of all aspects of doing surgery now vs waiting. She drew diagrams & explained EVERY measurement, bone structure & possibility of what to expect with hip dislocation. She explained that with Spina B patients many feel no pain with hip dislocation and if we do run into problems we still have a window of time to operate up until she is 8 yrs old. She sat on a board for Sp B patients and discussed the arguments for/and against hip surgery. She explained fully the reality if the hip popping right back out again. She says it’s sickening as a surgeon to take a cast off & have the hip pop right out. Then you are left with scar tissue & a failed surgery.
So for now, the benefits of waiting far outweigh proceeding with surgery at this time.
John and I are taking our little one out for a celebration dinner tonight. She has no idea why we are celebrating, but our hearts rejoice in the time we’ve been given to continue to allow her to adjust & flourish. If we ever reach a bend in the road where we feel surgery would be in her very best interest, we will certainly proceed with determination & prayer.
But….for tonight we rest & thank God that she will be able to run around and enjoy her first birthday celebration with us in four months! Our sweet girl will be 3 already! So hard to believe.
We want to sincerely thank all of you who have prayed & given advice. We sooooo very much appreciate it, and tuck all these things away in our hearts. Thank you for your love and support!!!